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And the much awaited test results show……

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Nothing.

Some minor things like my vitamin D levels are quite low (spend much time inside immobilised by pain do you?) and my cholesterol levels are marginally high but not actually high apparently.

So nothing.

Nothing at all.

Doctor is convinced there is something the matter with me. As she put it “There’s just too many joints and things that are problematic”. I agree. There must be something.

I have a referral to a rheumatologist. The doctor assures me that there are many more in-depth tests that the rheumatologist will do.

I am not surprised really. I had a feeling that nothing would turn up. I also feel that there is a good chance that the specialist will not find anything and I will be back to square one, in pain and told to “just deal with it”.

I know these are useless, rubbish thoughts. I must pick myself up and go forth to be prodded and drained of my vital fluids with great enthusiasm and an optimistic twinkle in my eye.

Truthfully I am hoping that in the months that it will take to get a specialist appointment I will improve greatly. Beefcake has now decided that I should wean Grub. He is convinced her continued feeding is taking an unreasonable toll on my body. I won’t even consider it until she gets to eighteen, no twenty, months. I would prefer weaning to occur more naturally but if we get to twenty months I will consider it if I am no better. Of course I expect I will all better by then.

I have the flu. I have had a fever for three days. I feel leaden and snot-filled, My throat feels as though I have swallowed a cheese grater. It is making me feel decidedly up-beat. Can you tell?

Beefcake has a job interview tomorrow. Wish him luck.

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10 responses

  1. Hugs Ali, I’m sorry that you’re still feeling so awful. And the right time to wean will present itself – I can see why Beefcake would want you to quit, but you have to do what feels right for you and your baby.

    Goodluck Beefcake!
    .-= badness jones´s last blog ..Ugh. =-.

  2. Oh no, please don’t give up in trying to get a diagnosis. Have they ruled out joint hypermobility syndrome? I have a friend who suffers very badly with this and some of the things you describe sound similar. http://www.hypermobility.org
    .-= Jennysnail´s last blog ..a very non productive day =-.

  3. Have I ever given you my schpeel about acupuncture? My rheumatologist looked at me in 2004 and said “Why are you here? I can’t do anything for you.” I was at the end of the road. I had nothing else. He WAS the specialist when I’d been through everything else. I turned to Chinese medicine to control my pain–because I couldn’t imagine spending the next 20 years of my life feeling so BAD and in PAIN. Acupuncture changed my life. It sounds so dramatic, but it’s true. I rarely ever have a flare-up anymore. Maybe once every 18 months or so.

    I hope Beefcake gets the job he wants. In this crazy world and crazy economic times, I really hope he gets the job!!!! Sending good vibes.
    .-= Hyphen Mama´s last blog ..Morsels and Crumbs…. =-.

  4. Oh Ali, I have been where you are SO MANY TIMES. I know exactly how you feel right now.

    When you see the rhuematologist, ask about connective tissue disorders (yes, I’m still harping about it, sorry!) because these can run from Lupus (which shows in a blood test) to EDS to Benign Joint Hypermobility Syndrome (which obviously won’t show in any blood tests, but leaves you crippled with pain and other assorted issues).

    I’m thinking of you.
    .-= Veronica´s last blog ..NaBlo =-.

  5. Holding thumbs for Beefcake! (thats a south african thing… otherwise known as crossing fingers.) I hope the next stage of testing will throw up some answers. I can’t imagine how frustrating it must be to know that something is just not right but to not be able to pin it down and treat it. As for weaning Grub, I guess it boils down to which decision has the greater weight, the benefits to your health to be weaned, or the detriments to your emotions to not be feeding your baby any longer. Tough choice.
    .-= Sarah´s last blog ..The great photo hoax! =-.

  6. I definitely second Veronica’s thoughts about connective tissue disorders. It took me 33 years and a bad fall to finally get diagnosed with Ehlers-Danlos Syndrome (Hypermobility). I am finally getting the help I need with pain management, physical therapy, etc. Low Vit D is a major player in pain too – so ask your doctor how you can get your Vit D levels to normal. My doc prescribed 4 weeks of intensive Vit D and then a maintenance dose daily thereafter. My pain levels are more tolerable now, other than the nasty flares of joint unhappiness. Check out http://www.ednf.org for more info.

  7. Well, after reading the above comments, I’m off to google connective tissue disorders, maybe I can find something to more accurately describe the odd aches and pains I get continually. Then I can take this information to my doctor who just continues to tell me to “rest and get some physio, take panadol for the pain”.

  8. “I know these are useless, rubbish thoughts. I must pick myself up and go forth to be prodded and drained of my vital fluids with great enthusiasm and an optimistic twinkle in my eye.”

    Okay, that made me laugh out loud. Your sense of humor is in great condition. I hope they’ll discover what is up soon so the rest of your will be, too.

    Good luck to Beefcake on his interview.
    .-= Leslie´s last blog ..The Breaking Point =-.

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